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Abstract:
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Intersex traits, which include variations in sex hormones, chromosomes, and reproductive anatomy, are estimated to occur in up to 1.7% of the population. People with intersex traits are been included among sexual and gender minorities as a health disparities population, and are thought to be vulnerable to social stigma and discrimination. Despite this prevalence and impact, relatively little is known about intersex populations, in part because intersex status is almost never assessed as a demographic in clinical, research, or administrative surveys. Unfortunately, few data exist to guide the implementation of intersex status measures. This presentation will summarize the findings of 2022 report of the National Academies relating to intersex measurement. Specifically, we will review challenges in measuring intersex status across these settings, summarize recommendations for measurement, and identify essential topics for future research.
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