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Abstract:
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Patient-oriented research, involving true and full partnerships with patients, is a relatively new direction in health research in North America and internationally. Champions of this route include Canada’s Strategy for Patient-Oriented Research (SPOR), and parallel developments in other jurisdictions, including the Patient-Centered Outcomes Research Institute (PCORI) in the United States. As a parallel to calls for evidence-based practice and policy, Dr. Bryan advocates for evidence-based methods in health research. In the context of patient-oriented research, it is therefore depressing to read the conclusion of a recent systematic review: “Research dedicated to identifying the best methods to achieve [patient] engagement is lacking and clearly needed” [Domecq et al, 2014]. In response, a key aspect of the SPOR initiative in British Columbia is methods development and Dr. Bryan, as Scientific Director, has overseen a major investment in methods research across six areas: patient engagement, knowledge translation, data science, real-world clinical trials, health economics, and patient-centred measurement (see: bcsupportunit.ca/methods-clusters). In his talk, Dr. Bryan will provide an overview of patient-oriented research developments internationally and highlight the methods development work in Canada, giving particular emphasis to projects relevant to health services and policy research. In addition, he will provide a personal perspective on the opportunities offered by the patient-oriented direction, and some of the main challenges.
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