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Activity Number: 626
Type: Topic Contributed
Date/Time: Thursday, August 8, 2013 : 8:30 AM to 10:20 AM
Sponsor: Biometrics Section
Abstract - #307850
Title: Harmonizing Individual Participant Data for Collaborative Research: How Should We Foster Such an Agenda?
Author(s): Isabel Fortier*+
Companies: Research Institure of the McGillUniversity Health Center
Keywords: Data harmonization ; software ; best practices
Abstract:

Harmonization is increasingly viewed by the research community as a promising avenue to support advancements in the health and social sciences. An expanding number of countries are fostering the development of research initiatives allowing the creation of harmonized or compatible datasets. However, the use of various designs and scientific methods across studies are often essential to address local technical and cultural challenges, and meet the specific scientific objectives of local researchers. Because of the complexity and heterogeneity of the information collected by studies, there are major challenges to be faced when aiming to retrospectively harmonize data (harmonization of pre-existing data) and thereby enable valid comparison and/or integration of information across studies. Collaborative research programs making use of harmonized data thus always require the use of rigorous methodological approaches, but their achievement can be facilitated by the streamline access to specialized software. The approach and resources proposed by the Maelstrom Research group of investigators will be discussed as one of the potential avenue to support data harmonization and integration.


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