JSM 2012 Home

JSM 2012 Online Program

The views expressed here are those of the individual authors and not necessarily those of the JSM sponsors, their officers, or their staff.

Online Program Home

Abstract Details

Activity Number: 355
Type: Contributed
Date/Time: Tuesday, July 31, 2012 : 10:30 AM to 12:20 PM
Sponsor: Section on Statistical Graphics
Abstract - #306830
Title: Using a Geographic Information System to Visualize Thalassemia Registry Patient Distributions in the U.S., 2005--2010
Author(s): Qing Zhang*+ and Hua Lu and Sean Trimble and James B. Holt and Alexis Thompson, MD, MPH and Patricia Giardina, MD and Alan Cohen, MD and Thomas Coates, MD and Elliott Vichinsky, MD, PhD and Ellis Neufeld, MD, PhD and Jeanne Boudreaux, MD and Althea M. Grant
Companies: CDC/DBD and CDC and CDC and CDC and Children's Memorial Hospital and Weill Medical College of Cornell University and Children's Hospital of Philadelphia and Children's Hospital of Los Angeles and Children's Hospital of Oakland and Children's Hospital Boston and Children's Hospital of Atlanta and CDC
Address: 1600 Clifton Road, NE, Atlanta, GA, 30333, United States
Keywords: Thalassemia ; GIS ; Disease mapping ; geographic distribution ; medical service facilities access

Thalassemia is a rare genetic deficiency disease. The geographic distribution of the patients in US is unknown. A registry was established to collect information during 2005-2010. to analyze the patients' geographic location relative to medical service facilities geographic information system was used to map the geo-distribution at national and treatment center level. Overall, Asian and white-specific distribution maps were displayed. Asian and white population information was also displayed as of race specific map. Mantel-Haenszel chi square test was used to evaluate the race disparity on proximity of patient resident zip code and treatment centers. Cumulatively 45% and 69% of patients lived in ZIP Codes that were within 15 and 30 and miles, respectively, of the treatment centers from which they received care. Asian patients lived closer to treatment site than white patients. 50% more Asian than white patients lived within 15 miles of treatment center (RR=1.5) while 30% more Asian lived within 30 miles of treatment center (RR=1.3) after adjusting treatment center effect. This work is on behalf of the Thalassemia Treatment Centers Coordinating Committee.

The address information is for the authors that have a + after their name.
Authors who are presenting talks have a * after their name.

Back to the full JSM 2012 program

2012 JSM Online Program Home

For information, contact jsm@amstat.org or phone (888) 231-3473.

If you have questions about the Continuing Education program, please contact the Education Department.