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Abstract Details

Activity Number: 152
Type: Invited
Date/Time: Monday, July 30, 2012 : 10:30 AM to 12:20 PM
Sponsor: Committee on Privacy and Confidentiality
Abstract - #303632
Title: How to Share Research Data: Views from Practitioners
Author(s): Timothy M Mulcahy*+ and Ronan Lyons*+ and Kathleen Mullan Harris*+ and Victoria Stodden*+ and Cynthia Dwork*+
Companies: NORC and Swansea University and The University of North Carolina at Chapel Hill and Columbia University and Microsoft Research
Address: 4350 East West Highway, Suite 800, Bethesda, MD, 20814, College of Medicine, Swansea, International, SA2 8PP, United Kingdom CB# 8120, University Square, Chapel Hill, NC, 27516, 1255 Amsterdam Ave, 10th floor, New York, NY, 10027, 1065 La Avenida, Mountain View, CA, 94043,
Keywords: disclosure ; confidentiality ; ethics
Abstract:

Many investigators and organizations view sharing research data with others as an integral part of the scientific process and their overall mission.  Indeed, several federal funding agencies mandate that their grantees share research data with others to promote new discoveries and reproducible research.  However, data providers also are ethically and often legally obligated to protect the confidentiality of data subjects' identities and sensitive attributes.  This creates a tension: how to share research data while protecting confidentiality?  The speakers in this panel session will offer their experiences with and solutions to sharing diverse types of confidential data, with the aim of providing ideas and options for statisticians involved with data sharing.  The speakers cover a range of data and interests, coming from business, academia, and government; health sciences and social sciences; and Europe and the US.  Speakers will allow ample time for questions from the audience.


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