This is the program for the 2010 Joint Statistical Meetings in Vancouver, British Columbia.

Abstract Details

Activity Number: 314
Type: Contributed
Date/Time: Tuesday, August 3, 2010 : 8:30 AM to 10:20 AM
Sponsor: Section on Survey Research Methods
Abstract - #308148
Title: Sample Design Methodology for Studying Patients Using Registry Data
Author(s): Shelton M. Jones*+ and Lauren A. McCormack and Timothy Patrick Johnson and Connie L. Hobbs and Joseph P. McMichael and Steven B. Clauser
Companies: RTI International and RTI International and Survey Research Laboratory and RTI International and RTI International and National Cancer Institute
Address: PO Box 12194, Research Triangle Park, NC, 27709,
Keywords: sampling patients ; disease registry sampling ; multimode data collection ; alternative sampling

Since approval of the Cancer Registries Amendment Act in 1992, states have continued to improve the construction of databases containing demographic and clinical information on cancer patients treated within their jurisdictions. These databases can serve as excellent sources for sampling purposes. The National Cancer Institute Community Cancer Centers Pilot Program used cancer registries at 10 cancer centers to sample and analyze patient cancer care experiences. These registries were the basis for a multi-mode survey design that supported the cancer centers' technical constraints while minimizing burden to the patients. We present a cost-efficient sampling method to select probability patient samples without the use of personal identifying information. This work should be informative for other survey designs that sample patients from different types of disease registries.

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