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Activity Number: 513
Type: Topic Contributed
Date/Time: Wednesday, August 5, 2009 : 2:00 PM to 3:50 PM
Sponsor: Section on Government Statistics
Abstract - #303422
Title: Disclosure Review Issues of Genetic Data
Author(s): Karen E. Davis*+ and Peter Meyer
Companies: National Center for Health Statistics and National Center for Health Statistics
Address: 3311 Toledo Road, Rm 4125, Hyattsville, MD, 20782,
Keywords: Disclosure review ; Genetic data ; NHANES
Abstract:

The National Health and Nutrition Exam Survey (NHANES) is a program of periodic surveys conducted by the National Center for Health Statistics (NCHS) that provide national estimates of the health and nutritional status of the U.S. civilian noninstitutionalized population. DNA specimens were collected during the NHANES III (1991--1994) and NHANES 1999--2002, then added back to the NHANES survey starting in 2007. In 2001, NCHS approved a protocol that allowed researchers to use genotyping data linked to NHANES data, although this data would only be accessed in the Research Data Center (RDC). This paper describes some of the issues involved in administration and disclosure review of genetic data.

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