JSM 2005 - Toronto

Abstract #302607

This is the preliminary program for the 2005 Joint Statistical Meetings in Minneapolis, Minnesota. Currently included in this program is the "technical" program, schedule of invited, topic contributed, regular contributed and poster sessions; Continuing Education courses (August 7-10, 2005); and Committee and Business Meetings. This on-line program will be updated frequently to reflect the most current revisions.

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Legend: = Applied Session, = Theme Session, = Presenter
Activity Number: 469
Type: Invited
Date/Time: Thursday, August 11, 2005 : 8:30 AM to 10:20 AM
Sponsor: Caucus for Women in Statistics
Abstract - #302607
Title: Multidimensional Aspects Related to Caregiving Experience
Author(s): Chih-Hung Chang*+ and Linda L. Emanuel
Companies: Northwestern University and Northwestern University
Address: 750 N. Lake Shore Drive, Chicago, IL, 60611,
Keywords: End-of-Life ; Caregiver ; Item response theory ; Instrument ; Outcomes
Abstract:

End-of-life care has benefited from recognition that quality patient care entails inclusion of the family. Studies now underscore the depth of burden of illness and responsibility of the family caregivers in this group. The positive and negative experience and extent of burden on the family caregiver demands psychometrically sound and practically relevant instruments. Only then can caregivers' functioning and well-being be assessed and they be suitably guided or assisted in their provision of care and protected from medical complications of excess stress. The study is to develop a screening and outcome assessment tool to capture the full range of areas related to caregiving, including physical, mental, spiritual experience, and social context. Six areas of caregiving experience previously identified from a larger national study of 799 family caregivers are further developed and refined: burden of the caregiving role, understanding illness information, role-related care skills, depression and other mental health needs, economic matters, and the nexus of community.

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Revised March 2005