JSM 2004 - Toronto

Abstract #300764

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Activity Number: 101
Type: Topic Contributed
Date/Time: Monday, August 9, 2004 : 10:30 AM to 12:20 PM
Sponsor: WNAR
Abstract - #300764
Title: Outcome Measures in Pediatric Rheumatic Disease
Author(s): Brian M. Feldman*+
Companies: WNAR
Address: Hospital for Sick Children, Toronto, ON, M5M 1M5, Canada
Keywords: health-related quality of life ; pediatric ; arthritis ; physical function ; outcome measurement
Abstract:

Subjective, questionnaire-based outcome measures are considered important in rheumatology as they allow the patient's view to be incorporated. Several physical function and quality-of-life (HRQL) measures have been adapted, or developed for children with rheumatic illness. The current measures have several limitations: some require proxy respondents, some are poorly sensitive to change, and the clinical meaning of most is not really understood. Recent work has tried to remedy some of these limitations. We have recently determined the clinical meaning of scores on the Childhood Health Assessment Questionnaire (CHAQ) - e.g. a score of 0.125 means mild disability while 1.75 means moderate. Moreover, we have developed a modified version of the CHAQ that discriminates better between children with arthritis and healthy controls (relative sensitivity 2.32). We have also shown that children and their families differentiate HRQL, health status, and overall quality of life. Finally, we have shown that utility may be used to measure HRQL, but that the time trade-off, and multi-attribute methods may be more valid and understandable than the standard gamble.

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