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Title
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Room
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* Improving Data on Racial/Ethnic Groups
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H-Cherokee
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Date / Time
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Sponsor
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Type
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08/07/2001
8:30 AM
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10:20 AM
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Section on Statistics in Epidemiology*, Cmte on Minorities in Statistics
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Invited
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Organizer:
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Olivia Carter-Pokras, Office of Minority Health
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Chair:
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Sheila P. Merriweather, DHHS/OSOPHS/Office of Minority Health
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Discussant:
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Floor Discussion
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10:05 AM
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Description
Researchers increasingly recognize the importance of collecting and reporting data on racial and ethnic groups not only in national health monitoring surveys but also in etiological studies. In addition, the centers for disease control and prevention and the national institutes of health encourage researchers to include racial and ethnic minorities in their human subject research. Even research not targeted to racial and ethnic groups may be hampered in efforts to collect valid and reliable data because of the growing diversity in the population and other challenges to research. At the same time as diversity is increasing in the united states, public concern is growing regarding privacy and confidentiality. Researchers are concerned about the resulting trends of lower survey response rates and increased data collection costs.
Increased community involvement in the design, data collection, analysis and interpretation, and in the dissemination phases of research is one approach which has been used successfully to improve survey response rates and increase cost effectiveness. Furthermore, previous reports containing recommendations to improve racial and ethnic data have acknowledged the importance of involving the community in research and data efforts. This panel will examine useful ways of incorporating communities, especially racial and ethnic groups, into the research process to improve data on racial and ethnic groups.
Panelists will describe success stories involving the communities studied, including the informed consent process, recruitment of individuals into a study, data collection, analysis, interpretation, and dissemination of findings back to the community.
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