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Title
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Room
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* Improving Data on Racial/Ethnic Groups
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H-Cherokee
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Date / Time
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Sponsor
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Type
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08/07/2001
8:30 AM
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10:20 AM
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ASA, IMS, JQT Review Board, Health Informatics, ASA, ENAR, WNAR, IMS, SSC, Section on Bayesian Stat. Sciences*, Biometrics Section*, Biopharmaceutical Section*, Business & Economics Statistics Section*, Section on Statistical Computing*, Section on Statistical Consulting*, Section on Statistical Education*, Section on Statistics & the Environment*, Section on Statistics in Epidemiology*, Section on Government Statistics*, Section on Statistical Graphics*, Section on Health Policy Statistics*, Section on Statistics and Marketing, Section on Physical & Engineering Sciences*, Section on Quality & Productivity*, Section on Risk Analysis, Social Statistics Section*, Section on Statistics in Sports*, Section on Survey Research Methods*, Section on Teaching of Statistics in the Health Sciences*, General Methodology, Classification Society of North America, Intl Chinese Statistical Association, Intl Indian Statistical Association, Natl Inst of Statistical Sciences, Natl Science Foundation, Cmte on Gay and Lesbian Concerns in Statistics, Cmte on Minorities in Statistics, Cmte on Privacy and Confidentiality, JBES, Technometrics, Chance, The American Statistician, Council of Chapters, ASA Atlanta Chapter, Caucus for Women in Statistics, Cmte on Professional Ethics, Mu Sigma Rho, Korean Statisticians in America, Merck & Co, Indian Statistical Institute, Gay & Lesbian Statisticians' Caucus, University of North Carolina Alumni, Texas A&M University Alumni, SMU Alumni & Friends, Interface Foundation of North American Stat Assn, Communications in Statistics, Census Research Meeting, Isolated Biostatisticians, Association of GCRC Statisticians, John Wiley & Sons, Isolated Statisticians, Cmte on Women in Statistics, Council of Sections, Cmte on Meetings, Cmte on Committees, Individual Membership Subcmte, JASA Book Review, ASA/SIAM Book Series, Carnegie Mellon Alumni & Faculty, Advisory Cmte on Continuing Education, Cmte on Statistics & Disabilities, JABES, JCGS, CIS, Cmte of Representatives to AAAS, Cmte on Career Development, Council of Presidents of Stat Societies, ASA Finance Committee, ASA/MAA Joint Cmte on Undergrad Stats, Academic Program Representatives, Cmte on ASA Archives & Historical Materials, Cmte on Membership, National Institute of Statistical Societies (NISS), Section on Nonparametric Statistics, Natl Research Ctr for Stats in the Environment, JSE, Cmte on Scientific Freedom and Human Rights, Intl Society for Bayesian Analysis (ISBA), Cmte on Statisticians in Defense and National Security, American Educational Research Association (AERA), Memorial Sessions, Amstat Online, Capital One, Household Credit Services, RAND Statistics Group, Cancer Center Biostatistics Directors, Forest Service Statisticians, Addison Wesley, Christian Statisticians, Hispanic Statisticians, Insightful Corporation, University of Pittsburgh, University of Connecticut, Eli Lilly and Company, Advisory Cmte on Teacher Enhancement, Committee on Publications, Science & Public Affairs Advisory Committee, Deming Lectureship Committee, STATS Magazine, Committee on Outreach, SPAIG, Development Committee, Iowa State University Alumni, Noether Award Committee, W J Youden Award in Interlaboratory Testing Cmte, JSM 2002 Program Committee, JSM Advisory Committee, Organizational Membership Committee, Special Subcommittee on Meetings, Key College Publishing, North Carolina State University, Duxbury/Thomson Learning, International Chinese Statistical Association, Statistics in Medicine, Cmte on Applied and Theoretical Statistics, ENAR, IMS, Section on Bayesian Stat. Sciences*, Biometrics Section*, Business & Economics Statistics Section*, Section on Statistical Computing*, Section on Statistical Consulting*, Section on Statistical Education*, Section on Statistics & the Environment*, Section on Statistics in Epidemiology*, Section on Government Statistics*, Section on Statistical Graphics*, Section on Health Policy Statistics*, Section on Physical & Engineering Sciences*, Section on Quality & Productivity*, Social Statistics Section*, Section on Statistics in Sports*, Section on Survey Research Methods*, Section on Teaching of Statistics in the Health Sciences*, General Methodology, Intl Indian Statistical Association, Cmte on Minorities in Statistics, Cmte on Privacy and Confidentiality, JASA, Theory and Methods, JASA, Applications, Caucus for Women in Statistics, Cmte on Women in Statistics, Council of Sections, Section on Nonparametric Statistics, ASA Alaska Chapter, ENAR, WNAR, IMS, Section on Bayesian Stat. Sciences*, Biometrics Section*, Business & Economics Statistics Section*, Section on Statistical Consulting*, Section on Statistical Education*, Section on Government Statistics*, Section on Statistical Graphics*, Section on Health Policy Statistics*, Section on Quality & Productivity*, Social Statistics Section*, Section on Survey Research Methods*, Section on Teaching of Statistics in the Health Sciences*, JASA, Theory and Methods, Caucus for Women in Statistics, Association of GCRC Statisticians, Cmte on Meetings, Washington Statisticial Society, Noether Award Committee, ENAR, IMS, SSC, Section on Statistical Consulting*, Section on Government Statistics*, Section on Health Policy Statistics*, Social Statistics Section*, WNAR, SSC, Cmte on Minorities in Statistics, Section on Statistical Graphics*, Section on Physical & Engineering Sciences*, Section on Quality & Productivity*
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Invited
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Organizer:
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Olivia Carter-Pokras, Office of Minority Health
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Chair:
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Sheila P. Merriweather, DHHS/OSOPHS/Office of Minority Health
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Discussant:
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Floor Discussion
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10:05 AM
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Description
Researchers increasingly recognize the importance of collecting and reporting data on racial and ethnic groups not only in national health monitoring surveys but also in etiological studies. In addition, the centers for disease control and prevention and the national institutes of health encourage researchers to include racial and ethnic minorities in their human subject research. Even research not targeted to racial and ethnic groups may be hampered in efforts to collect valid and reliable data because of the growing diversity in the population and other challenges to research. At the same time as diversity is increasing in the united states, public concern is growing regarding privacy and confidentiality. Researchers are concerned about the resulting trends of lower survey response rates and increased data collection costs.
Increased community involvement in the design, data collection, analysis and interpretation, and in the dissemination phases of research is one approach which has been used successfully to improve survey response rates and increase cost effectiveness. Furthermore, previous reports containing recommendations to improve racial and ethnic data have acknowledged the importance of involving the community in research and data efforts. This panel will examine useful ways of incorporating communities, especially racial and ethnic groups, into the research process to improve data on racial and ethnic groups.
Panelists will describe success stories involving the communities studied, including the informed consent process, recruitment of individuals into a study, data collection, analysis, interpretation, and dissemination of findings back to the community.
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