This is the program for the 2010 Joint Statistical Meetings in Vancouver, British Columbia.
Abstract Details
Activity Number:
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158
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Type:
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Topic Contributed
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Date/Time:
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Monday, August 2, 2010 : 10:30 AM to 12:20 PM
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Sponsor:
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Section on Survey Research Methods
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Abstract - #307924 |
Title:
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Data Access and Confidentiality Policies of the National Children's Study
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Author(s):
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Jennifer Park* and Paymon Hashemi+
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Companies:
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Eunice Kennedy Shriver National Institute of Child Health and Human Development and Eunice Kennedy Shriver National Institute of Child Health and Human Development
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Address:
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6100 Executive Boulevard, Bethesda, MD, 20892,
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Keywords:
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National Children's Study ;
data access ;
confidentiality ;
policies and procedures
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Abstract:
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The National Children's Study (NCS) is designed to investigate the effects of environmental exposures and gene-environment interactions on pregnancy outcomes, child health and development, and precursors of adult disease. Environmental samples, bio-specimens, family history, ultrasounds and medical records, images, and direct assessment of health and development will be collected. This unprecedented array of sensitive, personally, and socially identifiable data requires an innovative, comprehensive, and evolving data access plan that responds to NCS principles of data integrity, data sharing, and protection of confidentiality in a changing scientific and regulatory climate. Data access policies and procedures will be presented, with special focus on the management of socially identifiable data, and sharing information with study communities, including Tribal Nations.
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The address information is for the authors that have a + after their name.
Authors who are presenting talks have a * after their name.
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