JSM 2004 - Toronto

Abstract #301628

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Activity Number: 412
Type: Contributed
Date/Time: Thursday, August 12, 2004 : 8:30 AM to 10:20 AM
Sponsor: Section on Survey Research Methods
Abstract - #301628
Title: Sample Frame Deduplication in the World Trade Center Health Registry: Minimizing Overcoverage and Cost
Author(s): Joseph Murphy*+ and Paul Pulliam and Randolph Lucas and Deborah Walker
Companies: RTI International and RTI International and RTI International and NYC Department of Health and Mental Hygiene
Address: , , ,
Keywords: registry ; deduplication ; coverage ; WTC
Abstract:

The World Trade Center (WTC) Health Registry is designed to assess the health effects of the WTC disaster of September 11, 2001. It will follow those exposed to dust and fumes on 9/11 and in the ensuing weeks as the fires burned. Persons who may enroll in the Registry include those who were in lower Manhattan on 9/11; residents and school children south of Canal Street; and persons involved in rescue, recovery, or clean-up at the WTC site or Staten Island Recovery Operations between September 11, 2001 and June 30, 2002. The sample frame will include people from more than 1,000 potential overlapping list sources of individuals. To avoid overcoverage, list entries are systematically deduplicated using an algorithm to identify likely duplicates. Indeterminates are manually reviewed to assure that the same individual was not included in the sample more than once. This paper describes the process of deduplication and assesses the resulting increase in quality and reduction in cost. Respondent demographics and list sources are evaluated to determine where overcoverage may have been most problematic, had deduplication not taken place.

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